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Today we celebrate Zivah's 1st birthday! 🎈 We a

Today we celebrate Zivah's 1st birthday! 🎈
We are all so gratefull that she is doing so good but what a rollercoaster this year has been! #littleheartworrior
#openheartsurgery #tetralogyoffallot #nieces

EASTER 💛 When we remind what Jesus did for us

EASTER 💛 When we remind what Jesus did for us and spend time with our loved ones! I love our family traditions but this year we rescheduled the brunch and spend the weekend on the boat So thankfull for the luxury of knowing Him, having an amazing family, our boat and this wheater! It always makes me feel so much better.
What a full life! 💛

HELLO AGAIN! ♡ It's time to blog again! I had t

HELLO AGAIN! ♡ It's time to blog again! I had taken a break, but that break just turned into almost half a year of radio silence! 🙈 I often hear that my stories are missed and I am asked if I'm okay, because I'm so quiet I must be very tired. But nothing could be more wrong, I'm actually doing very well! Read here how I got more energy and that I conquered Corona twice! 💪🏼 Link in bio! #blog #Blogger #healthblog #chronicillness #lifestyleblog #heartdisease #covid #lungproblems #ketodiet #ketolifestyle #nature #woods #unchargeable #chronicillnessawareness #chronischziek #alwaystired #nosuger #theheartlife #hartpatiënt #motivation #beingsick #dontcomplain #positivevibes #positivemindset #writing #gratitude #feelingblessed

35 years of marriage! ♡ I'm so proud of my pare

35 years of marriage! ♡ I'm so proud of my parents! They stoot by each other after every challenge they have been too in the past 35 years, and it was a lot. It hasn't been a easy life but you overcame everything by your love, faith and devotion! This is what real love looks like!
Love you both so much. X

MAKING PLANS I've been planning a vacation blog f

MAKING PLANS I've been planning a vacation blog for a while now. But with a chronic illness there is never so much to plan. In this blog I share something about my holiday, flying with oxygen and an S-ICD and what the reason is for my silence after the holiday. Link in bio! #blog #blogging #chronicillnessblog #lifestyleblog #quote #healthblog #healthstory #spoonie #unchargeble #spoonielife #spoonielifestyle #chronicillness #chronicdefect #chronicillnessawareness #invisibleillnessawareness #invisiblesick #chd #childheartdisease #invisibleillness #heartproblems #heartdisease #usingoxygen #fittofly #icd #s-icd #notenoughenergy #alwaystired #ibiza #summer2021 #holidaymodus

Happy 3th birthday to my best furry friend! ❤️

Happy 3th birthday to my best furry friend! ❤️🐾 Up to a new year full of cuddles and adventures! #doglover #dogsofinstagram #birthdaydog #celebratelife #bestfurryfriend #pomeranianlife #photooftheday #pomeriaan #pomeranian #dwergkees #puppy #thecutest #cuddletime #dogshoot #animallover #friendship #pom #cutedog #adventuretime #soest #dogpic

World animal day! 🐾 You make my life so much b

World animal day! 🐾 You make my life so much better
Let's celebrate with yummy treats and cuddles all day! #worldanimalday #donteatanimalday #bestfriend #furryfriend #paw #sleepyhead #cuddletime #dogs #dogsofinstagram #pomeranianlife #pomerian #spoiled #treats #doglover #bestie #pomeranianpuppy #fluffydog #pomeranian #cutestdog #petsofinstagram #worldpetday

Sibling's Day! ♡ I am so happy to have you in m

Sibling's Day! ♡ I am so happy to have you in my life! Growing up wouldn't have been so much fun without you both! Playing, making trouble and even now we have the greatest fun with each other, with jokes that only we understand. 😉 Even though you often came on the second place and growing up in a family where it often revolved around me and my illness is not 'normal' and not easy for you. But despite / thanks to this we are happy with each other and a close family! I am proud of you, both of you! ♡ 📸 @marjoleinmaaktfotos #siblings #siblingsday #brother #sisters #chronicillness #family #heartproblems #brusjes #growingup #chronicillnessawareness #invisibleillnessawareness #invisiblesick #chd #childheartdisease #invisibleillness #bornsick #familyshoot #sunsetshoot #lifestyleblog #quote #blogging #healthblog #healthstory #spoonie #unchargeble #spoonielife #spoonielifestyle #pulmonaryhypertensie #chronicillnessblog #proudsister

Intensely happy to be here again, in Ibiza! 💙

Intensely happy to be here again, in Ibiza! 💙 After 4 years of not flying because of a not fit to fly notification, corona etc, it's so special that this is possible again and we realize that very well, that's why we enjoy every minute! Es Vedra, what a terrible hike, but how beautiful it is! Enjoyed the view, exhausted and a migraine attack richer, I'm still quite proud in my bed! #ibiza #spain #traveling #traveltoibiza #eivissa #esvedra
#esvedraIbiza #holidaymodus #bluewater #healthstory #chronicillness #invisibleillness #healthproblems #summer2021 #heartproblems #migraine #hiking #invisibleillnessawareness #photooftheday #sicknessawareness #spoonie #healthblog #spoonielife #spoonielifestyle #pulmonaryhypertensie #childheartdisease #favoriteplaceontheworld #mostbeautiful #prettyibiza #inlovewithibiza

Ready for our weekendtrip on the ELISE! ⚓ We ch

Ready for our weekendtrip on the ELISE! ⚓ We changed the name of our boat. Now Elise also stands for fun and freedom!! ❤️ #boatadventures #boatlife #boattrip #biesbosch #summer2021 #finalysun #qualitytime #fun #freedom #boatElise #weekendjeweg #weekendtrip #trip #holidaymodus #goodtimes #sailing #dordrecht #holland #hollandnature #onthewater #ontheboat #travel #travelbyboat #newname #dutchnature #dutchwaters #distraction #chronicillness #invisibleillnessawareness #boatletters

ELISE ❤️ I was so proud to hear that my niece

ELISE ❤️ I was so proud to hear that my niece Zivah Elise was born and very honored that she was named after me! But that quickly changed into guilt. We heard that she also has a congenital heart defect and needs surgery. It is a shock for the whole family, reliving this again. Read more in my blog
Link in bio 📸 @marjoleinmaaktfotos #hartekind #niece #baby #babyofinstagram #babyphotography #heartproblems #chd #tetralogyoffallot #childheartdisease #childsurgery #soulmates #chronicillness #chronicdefect #chronicillnessawareness #invisibleillnessawareness #photooftheday #babygirl #chdwarrior #family #tetralogievanfallot #hospital #vsd #invisibleillness #blog #healthblog #lifestyleblog #chronicillnessblog #quote #believegod #trust

FOCUS The last few weeks I have been very quiet,

FOCUS The last few weeks I have been very quiet, here and on my blog. Regularly I was asked by active readers if I am oke and why I no longer write. I needed some time to change my focus. Writing about that part of my life that I normally like to ignore didn't always make me happier. You can read more about it in my blog.
Link in bio! 📸 @marjoleinmaaktfotos #focus #chronicillness #chronicdefect #chronicillnessawareness #invisibleillnessawareness #photooftheday #sicknessawareness #spoonie #unchargeble #spoonielife #spoonielifestyle #pulmonaryhypertensie #fashion #fashionshoot #invisibleillness #onzichtbaarziek #heartproblems #heartdisease #heartsurgery #spoonieblog #chronicillnessblog #chroniclifestyle #refocus #lungproblem #pulmonaryhypertensie #tetralogyoffallot #blogging #brightsideoflife #chd #hartekind #childheartdisease

💝 Happy 1st birthday to my website and account!

💝 Happy 1st birthday to my website and account!! 💝 I am so grateful for everything this blog has brought me!
The people I got to know, the sharing of experiences and the support from everywhere. I got to know myself better and others got to know me better. I learned to set my limits and let go. I want to say a huge thank you to all my readers and followers for all the support and also for sharing your story with me. The last few weeks I've taken a little break from blogging and posting, but I'm back in business! Sunday there will be a blog about this. And I want to give a special thank you to my dear, supporting and creative friends! @marjoleinmaakfotos for the beautiful pictures every time again! @paulinedenouden1990 for creating and managing my website The heart life! #1stanniversary #blog #blogging #chronicillnessblog #lifestyleblog #quote #healthblog #healthstory #spoonie #unchargeble #spoonielife #spoonielifestyle #pulmonaryhypertensie #heartproblems #heartdisease #heartsurgery #spoonieblog #chronicillnessawareness #healthstory #therealstory #masksoff #openingup #chronischziek #onzichtbaarziek #hartafwijking #chd #childheartdisease #storyfromtheheart #theheartlife #hartritmestoornis #hartekind

Back to real life again.. Unfortunately our vacat

Back to real life again.. Unfortunately our vacation has come to an end. We enjoyed the water and the sun, the freedom and our time together!
Time flies when you're having fun! ⚓ #holidaymodus #vacation2021 #boatlife #enjoythesun #sailing #boattrip #holland #friesland #sunnyweather #sunshine #chronicillness #chroniclifestyle #invisibleillness #invisibleillnessawareness #chronicillnessawareness #chd #childheartdisease #timeoff #couplegoals #freedom #onthewater #ontheboat #vakantie #spoonie #spoonielife #sailingholiday #sailing #adventure #boatadventures #heartproblems #heartdisease

'My favorite place on the world is next to you' ♡ (But this one comes close!) #travel #travelbyboat #lovecouple #beach #friesland #sunnyweather #sunshine #loveofmylife #theplacetobe #inlove #holidaymodus #holidayinholland #therealdeal #couplegoals #coupleholiday #chronicillness #invisibleillnessawareness #photooftheday #sicknessawareness #spoonie #unchargeble #island #beachlife #chronicillnessawareness #disabled #invisibleillness #celebratelife #adventure #sailingholiday #tjeukemeer

'The secret of change is to focus all of your ener

'The secret of change is to focus all of your energy not on fighting the old, but on building the new'.
♡ - Socrates #quote #quoteoftheday #quotesaboutlife #keepgoing #staypositive #focusonthegood #focusonpositivity #lookforward #dontlookback #chronicillness #chronicdefect #chronicillnessawareness #invisibleillnessawareness #invisiblesick #chd #childheartdisease #invisibleillness #heartproblems #blog #blogging #chronicillnessblog #lifestyleblog #healthblog #healthstory #spoonie #unchargeble #spoonielife #spoonielifestyle #holidaymodus #yachting

HART OP HOL! 🧡 Most people know that I have pr

HART OP HOL! 🧡 Most people know that I have problems with my heart rhythm. I have explained in previous blogs about my PVC and VT arrhythmias.
But did you know that, unfortunately, that is not all? As a child I suffered a lot because of the Wolff Parkinson White syndrome, a congenital and life-threatening heart rhythm disorder. Find out more about this and how I'm doing after my last ablation in my new blog! Link in bio! 📸 @marjoleinmaaktfotos #invisibleillness #heartproblems #heartdisease #heartsurgery #spoonieblog #chronicillnessblog #spoonie #spoonielife #wpw #wpwsyndrome #wolffparkinsonwhitesyndrome #wolffparkinsonwhite #syndrome #syndroom #heartrythmproblems #pvc #ventriculartachycardia #chronicillness #chronicdefect #bornsick #chd #childheartdisease #childsurgery #heartbeat #hartritmestoornis #sunsetshoot #lifestyleblog #quote #blogging #healthblog

Happy Father's day to the best daddy in the world!

Happy Father's day to the best daddy in the world! ♡ Thank you for showing me how to love and to be loved! @m.jsterk125 #fathersday #bestdad #bestdadintheworld #blessed #fatherdaughter #fatherdaughtertime #vaderdag #chronicillness #chronicdefect #chronicillnessawareness #invisibleillnessawareness #photooftheday #babygirl #chdwarrior #daddy

This is the captain speaking, throw the bunches l

This is the captain speaking,
throw the bunches loose our holiday has started!! ⚓ #holidaymodus #holiday #vacation #boatlife
#boattrip #sailing #sailingholiday
#holland #blueskies #yacht #boat #sunnyweather #dreamcometrough #qualitytime #boatdog #captain #traveling #watersport #jacht #varen #holland #hollandnature #onthewater #ontheboat #adventuretime #friesland #chronicillness #invisibleillnessawareness #photooftheday #sicknessawareness #spoonie

The first time I'm drinking (ice) coffee after my

The first time I'm drinking (ice) coffee after my ablation.
I hope my heart can handle it now 🙈 Who also get problems with their heart rhythm after drinking coffee? ♡ #coffee #icecoffee #heartproblems #cafeine #heartrythmproblems #heartrhytm #chronicillness #chronicdefect #chronicillnessawareness #invisibleillnessawareness #invisiblesick #chd #childheartdisease #postablation #ablatie #ablation #recovering #chronicillnessblog #lifestyleblog #healthblog #healthstory #spoonie #unchargeble #spoonielife #spoonielifestyle #pulmonaryhypertensie #koffieleut #chronischziek #blog #onzichtbaarziek

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